Chronic Disease Research Group
Hennepin Healthcare Research Institute
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HHRI Awarded Continuation of SRTR Contract
Minneapolis, MN (September 21, 2020) – Following a federal open competition acquisition process, the Chronic Disease Research Group (CDRG) of the Hennepin Healthcare Research Institute (HHRI) was awarded the federal contract to operate the Scientific Registry of Transplant Recipients (SRTR). Among its key functions, the SRTR evaluates the status of the nation’s solid organ transplant system and provides analytic support to the Organ Procurement and Transplantation Network (OPTN) for purposes including the formulation and evaluation of organ allocation policies in the United States.
HHRI will continue to manage the SRTR under contract with the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS). The new contract award marks the third contract term for the operation of the SRTR for HHRI, which has operated the SRTR since 2010. The new contract contains a series of optional terms that may extend the period of performance through September 2025.
HHRI is the research arm and a nonprofit subsidiary of Hennepin Healthcare System, Inc., an integrated healthcare system that includes the Hennepin County Medical Center (HCMC), a nationally recognized Level 1 Trauma Center and acute care and teaching hospital in Minneapolis, MN. HHRI is one of the largest nonprofit medical research institutions in Minnesota, ranking nationally in the top 10% of institutions receiving funding from the National Institutes of Health (NIH).
CDRG currently serves as the Coordinating Center for the United States Renal Data System (USRDS) and in the past has managed the Kidney Early Evaluation Program of the National Kidney Foundation (NKF), the North Central Donor Exchange Cooperative (a collaboration between kidney transplant centers in the Upper Midwest), the Peer Kidney Care Initiative, and the CKD (Chronic Kidney Disease) Health Evaluation Risk Information Sharing project conducted by NKF in collaboration with the Centers for Disease Control and Prevention (CDC). CDRG has also received international recognition for its analyses of chronic disease states, including chronic kidney disease, cardiovascular disease, and diabetes.
Jon J. Snyder, PhD, MS, will continue to serve as SRTR Director, Ajay K. Israni, MD, MS, as Deputy Director, Bertram L. Kasiske, MD, FACP, as Medical Director for Living Donation, and Ryutaro (Ryo) Hirose, MD, as Surgical Director. National Senior Staff members with organ-specific expertise and expertise in epidemiology, histocompatibility, biostatistics, economics, and computer modeling of allocation systems help complete the team. More information about SRTR can be found at www.srtr.org.
Minneapolis – August 15, 2019 – Effective September 21, 2019, Bertram Kasiske, MD, FACP, will be stepping down as the Director of the Scientific Registry of Transplant Recipients (SRTR), and Jon Snyder, PhD, will assume the Director role. Dr. Kasiske has been the Director since September of 2010 and has lead SRTR through 9 successful years, overseeing improvements in program-specific and OPO-specific reporting, creation of new public and secure SRTR websites, the launch of the Living Donor Collective pilot project, publication of the SRTR/OPTN Annual Data Reports, support of all OPTN policymaking committees, and numerous scientific publications furthering the field of solid organ transplantation.
Dr. Kasiske will continue supporting SRTR with a primary focus on living donation, continuing to lead the Living Donor Collective pilot project, and Ajay Israni, MD, MS, will continue to serve as the Deputy Director of SRTR.
Dr. Snyder has been the Director of Transplant Epidemiology for SRTR since September 2010, and he began his career in the field of transplant epidemiology in 1999. He oversees the Chronic Disease Research Group’s (CDRG) research in the areas of organ, eye, and tissue donation and transplantation. CDRG currently operates SRTR under contract with the Health Resources and Services Administration (HRSA) of the US Department of Health and Human Services. Dr. Snyder’s research focuses on data analytics targeted at healing and saving lives through transplantation. In addition to his work with SRTR, Dr. Snyder serves as a Statistical Editor for the American Journal of Transplantation and as an Associate Editor for the journal Transplantation. He also serves on the Board of Directors for Donate Life America and the Organ Donation and Transplantation Alliance. Dr. Snyder holds a Master of Science in Biostatistics and a Doctor of Philosophy in Epidemiology from the University of Minnesota, where he also holds an adjunct faculty appointment in the Division of Epidemiology and Community Health, School of Public Health.
Continuing to provide excellent service to HRSA and the transplant community will remain Dr. Snyder’s primary focus as the Director of SRTR. Questions and/or comments can be directed to firstname.lastname@example.org.
Jon Snyder, PhD, will become the new Director of the Scientific Registry of Transplant Recipients (SRTR).
Minneapolis – June 13, 2019 – The Chronic Disease Research Group (CDRG) of the Hennepin Healthcare Research Institute (HHRI) has been selected to administer the United States Renal Data System (USRDS) federal contract. The USRDS is a national registry that collects, analyzes, and distributes information about chronic kidney disease (CKD) and end-stage renal disease (ESRD) in the United States.
In 2016, ESRD-related costs reached $35.4 billion – 7.2% of Medicare service expenditures overall. On average, care of patients on hemodialysis (HD) costs $90,971 per person, per year, with 5-year survival of only 42%. The mortality rate for HD patients is approximately triple the mortality rate for cancer patients aged 65-74 years. These figures demonstrate the importance of monitoring and analyzing ESRD-related data.
“We’re so excited to have our team contribute to the fight against kidney disease,” says Kirsten Johansen, MD, Director of the USRDS, Director of the Division of Nephrology at Hennepin Healthcare HCMC, Co-Director of CDRG, and Professor of Medicine at the University of Minnesota, “Data collected and disseminated through the USRDS about kidney disease in the U.S., its treatment, and its impact will be used by patients, their doctors, kidney researchers, and the federal government to learn how to improve the care we provide for this devastating condition.”
USRDS collaborates with members of the Centers for Medicare & Medicaid Services (CMS), the United Network for Organ Sharing (UNOS), and the ESRD networks, sharing datasets and actively working to improve the accuracy of ESRD patient information.
CDRG was the federal contractor for the USRDS from 1999-2014 and is currently the federal contractor for the Scientific Registry of Transplant Recipients (SRTR). CDRG has also received international recognition for its analyses of chronic disease states, including chronic kidney disease, cardiovascular disease, and diabetes.
CDRG’s parent organization, HHRI, is a non-profit academic research foundation headquartered in Minneapolis, MN. In addition to Dr. Johansen, many members of the team who will work on the USRDS are also affiliated with the University of Minnesota School of Medicine.
100% of the funding for this study is supported by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the NIH under Award Number 75N94019C00006. The content is solely the responsibility of the authors and does not necessarily represent the official views or imply endorsement of the NIH.
Kirsten L. Johansen, MD (center), USRDS Director, will lead an NIH-funded nationwide effort on kidney disease surveillance, assisted by USRDS Deputy Director James B. Wetmore, MD, MS (left) and David T. Gilbertson, PhD (right), Project Director for the USRDS.